05 August 2017

Finding a new Normal

Well...it's been a couple of years since I've blogged.  Life..travel...all those wonderful things that keep a person busy have taken priority, and honestly, I just didn't feel like writing.
So why am I revisiting this?  Because my life has taken a turn I never saw coming and I feel like I need to write about it.  I don't expect anyone to read this, but if you're here and are reading it...this is what it is now.
I am in kidney failure.
It seems I have a genetic kidney disease...polycystic kidney disease (PKD)...but as I was adopted, I never knew.  Lucky me. (Sarcasm fonts really DO need to exist.)
So, despite the fact I have no other medical conditions (that's actually a really good thing, most people in renal failure can't say that, apparently), I currently have only 9% kidney function. I have no pain, no real problems, just kidneys that need to be replaced.
So you'd think, Great, get a transplant!  Insurance. Don't get me started on why we need universal healthcare.  (I have insurance, they just don't want to pay for a transplant...it's just my life, no big deal, right?!)

Here's the deal...I'm active.
I am a Tour Manager.  I have kids.  I'm an actor and event planner.
And now my life is complicated by this "gift" of kidney failure.
I don't like being told I can't...and I'm going to do my best to NOT let this stop me.
But it's hard.
And slightly depressing.
And so I need to write about it...so I DON'T fall into a state of depression.

Bear with me.  It's going to be a bumpy ride.